Autism Today - your
online source for the latest news in autism.
Featured in this issue:
Articles
1. Premier Council - Interview with Karen Leigh Simmons
2. Inspiration: Autism- By Jennifer Kummins
Opinions
1. Poll- Is the Ring Finger Connected to Autism- Results
Creative
1. Story- Billy's Haircut- By Kathy Vigil
2. The Art of Daniel Muller
Conferences and Special Events
1. Conference- 2nd Annual Keys To The Treasure Chest
Conference
Autism Q & A
1. Questions and Answers dealing with autism- Karen
Leigh Simmons
Books, Videos and Other Resources
1. New Resources now available through Exceptional Resources
====================================================
Article 1. Premier's Council- Interview with Karen
Simmons Sicoli
1) a. How did you get into all this...the company,
the website, etc.?
Hi Cliff, I suppose I could write another book about
how I got into this. It began in 1994 after my fourth
child, Jonny, was diagnosed with autism. To make a long
story short, I decided to write a book to help my son
and others like him understand what is commonly known
as "the invisible disability". "Little
Rainman", written through Jonathan's eyes, has
been sort of an "operations manual" to help
teachers, siblings, peers and even Jonny along the way
of his autism path by helping them recognize the early
warning signs of autism. Published six months after
completion, "Little Rainman" has sold over
10,000 copies worldwide. I have included my bio for
further detail in answer to your question number six.
To see more of this interview, visit http://www.autismtoday.com/?01
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Article 2. Inspiration: Autism- By Jennifer Kummins
If somebody asked me to describe the landscape of Heaven,
I couldn't, but I know it's beautiful. If anybody came
to me and probed "Jennifer, how wide do an angel's
wings span?" I'd shrug my shoulders, but I'd close
my eyes to think about it. Many parents come to me with
a question that is equally mysterious, one with no easy,
tangible answer: "What is inside my autistic child's
mind?" Of course, I couldn't possibly begin to
answer their question without spending a good deal of
personal time with their child. Each child is so very
unique. Usually, instead of traveling that route, instead
of talking about the mind of autism, the biology of
autism, the mask that is autism, I talk to them about
something that is much more tangible, more vivid, more
real: the heart of autism. After all, one autistic child's
heart is as heavenly as every angel combined, don't
you agree?
To see the full article, visit http://www.autismtoday.com/?01
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Opinion Poll
According to an article published by Alanna Mitchell
of the Globe & Mail on April 28, 2001, a research
study conducted by J.T. Manning, a biologist at the
University of Liverpool and the renowned autism specialist,
Simon Baron-Cohen of the University of Cambridge, explored
a potential link between the ring finger and autism,
and found one.
"It turns out that the longer the ring finger
is, compared with the index finger, the greater the
likelihood of autism or Asperger's syndrome, a developmental
disorder similar to autism but less severe.
The study is based on a small sample size of autistics
in England, but the results are dramatic. Eventually,
the authors say, the length of the ring finger may prove
to be a marker for the disorders.
The testosterone link is this: The length of the fingers
is determined early in gestation, certainly by the 14th
week. During that time, testosterone is one of the major
agents of change in the amniotic fluid, though not the
only one".
According to our opinion poll posted on autism today,
95% of people who voted believe that there is no link
between the ring finger and autism and 5% believe that
there is a link.
To voice your opinion, please visit http://www.autismtoday.com/?01
and vote!
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Creative
1. Visit our website at http://www.autismtoday.com/?01
to see the art of Daniel Muller.
2. Story- Billy's Haircut- By Kathy Vigil
Billy is autistic and he is my godson. He is a child
I would never change to normal for anything in the world.
As a family I think we have stopped looking for a cure
and have come to accept Billy for who he is and we only
search to understand him instead of fix him. When secretin
first came out we were very excited as a family and
looked in to it and what it might be able to do to help
Billy. It was experimental at the time and would have
cost a lot of money and wasn't something we were willing
to try. We never really talked about it again. My sister
has two children Brianna 11 and Billy 9 she is good
mother but a busy one. I just graduated from college
and have a lot of time on my hands and have been reading
everything there is to read about autism because no
one in our family has the time. Billy is already nine
years old and I feel that time is slipping away from
us. I am not searching to cure him I am only searching
for ways to deal with him and his behavior. Billy is
a pretty big boy and will probably grow to be maybe
6ft tall. He is only nine and he beats my sister or
his sister up every once in awhile. She is able to control
him to an extent. I am afraid for the day when she can't
and he gets the best of her or me since he is close
to me. He sometimes pinches or hits you when he gets
upset. My sister has scars on her arms from his scratches.
What I fear the most is the day that we can no longer
control him. I have read a lot of notes from parents
of autistic children who have said that the aggressiveness
gets worse as they get in their teens and that they
hope that it is just puberty and it will pass.
It recently took for 5 grown men to give Billy a buzz
haircut. It was ultimate chaos that day. It was what
he feared the most the clippers. There was about 10
of us one morning at my mothers house we told Billy
he was going to get a hair cut. He yells "NO HAIRCUT"
and then says "OK, OK CALM DOWN CALM DOWN".
We got him to sit in the chair on his own but when the
Buzzer started going he started to run. We held his
legs, arms and head down. All While he was spitting,
trying to kick them and he even used his toe nails to
dig into the skin of those who were holding his legs
down. I chose not to help because it was too painful
to me to see him screaming and to see the tears stream
down is red little face. I wanted to cry. At first I
tried to help comfort him but he just looked at me like
Auntie Kathy why aren't you helping me. It took about
two hours to finish. They let him go once because he
was to strong he had a Mohawk only half his head finished
as he ran to put his hat on. We told him we had to finish
all of us yelling at him to get back in the chair, and
then the struggle began again. We did finish but that
experience haunted me.
I got on the Internet and began to search as to why
he was so scared of getting a haircut. When I came across
an article written by Temple Grandin on the senses and
how certain sounds for her were torture and how when
her mother used to wash her hair and after her scalp
would hurt her. I learned that many autistic children's
senses are heightened perhaps even 5 times more than
our own. Sight, touch and hearing. It all made sense
to me I went into the bathroom and turned on the clippers
and put them next to my ear to listen not a real pretty
sound for my ears to hear. Perhaps Billy heard it differently
than we did and the feeling against his scalp may have
been overwhelming and even painful for him. That is
why he does not like haircuts not because he was disobeying
us or acting like a little spoiled brat by not wanting
to do as he was told.
My older brother is a caring person and I know he loves
Billy. But he tends to yell a lot and his voice is very
harsh and mean sounding. After the haircut was finished
everyone was yelling at Billy telling him to take a
shower to rinse the hair off. He threw himself on the
floor banging his head. I yelled at my brother and everyone
else (and I never yell) to leave him alone for awhile
that he has been traumatized enough. What it must have
been like for him all ten of us yelling at him to do
this and to do that. It was sensory overload for him
he was angry frustrated and hurt. I printed the article
out and made everyone of my family members read it.
It touched them all and my Dad thought that we should
even let him grow his hair long and wear a ponytail.
My yelling older brother even agreed after reading the
article who is often the one who says you can't let
him get away with things he is spoiled and gets what
he wants. That may be true sometimes but I want to tell
him don't you see its not that he is "spoiled"
he is autistic. I knew that his sensitivities might
have been why he was acting the way he did but I never
knew how much. I noticed other things that bother him.
Like when the dogs bark he tells them to stop and makes
them come in the house. Sometimes he likes to lick things,
and he smells and touches my hair quite frequently.
The reason I wanted to share this story was because
I wanted to encourage other families to educate themselves
and other family members on autism. Because other people
may act like they understand autism but they really
don't all they see is a child misbehaving or a child
who doesn't listen. They don't see or understand the
world of autism any more than we do. The only people
who know what it like to be autistic is autistic people
themselves. People like Temple Grandin who can tell
us now as adults what it was like as a child. They are
able to tell us now because they have learned how to
express themselves as adults or teenagers. I have learned
the most about autism from people who are autistic.
I am sorry Billy is autistic and will always be. No
diet, medication or miracle therapy will ever change
that. After that haircut was over I told him how handsome
and nice he looked. He came over to me looked at me
grabbed my arms still mad and scratched me and I said,
"what did I do?" Of course he couldn't tell
me. It was his way of telling me you didn't help me.
Well I am going to try my best to help him now I will
do my best to understand him and the world he lives
in.
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Conferences and Special Events
Exceptional Resources Inc. will be holding their 2nd
Annual conference on Autism and Aspergers Syndrome called
Keys To The Treasure Chest- X Marks the Spot. The conference
will be held in Edmonton, Alberta Canada and will feature
Catherine Faherty and Paul MCGaffey as Keynote speakers.
To find out more, visit http://www.autismconferences.com/featuredconf.shtml/?01
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Autism Q & A
Questions and Answers dealing with autism- Karen Leigh
Simmons, Author of "Little Rainman"
1. Subject: Problems of a 3 year old
Question - Hello, I have a 3 year old son who is autistic.
Whenever he goes out of the house, he looks very uncomfortable
and there is a blank expression on his face, he becomes
stiff and refuses to even turn his head. He doesn't
smile or talk outside the house. Of late he keeps his
mouth slightly open with his face muscles (especially
near the mouth) very stiff. Any amount of my trying
to put his lips together doesn't help. He looks lifeless
and passively follows our instructions without any resistance.
It looks as if he wants to shut off from the world around
him. Is he frightened of the outside world? But the
moment he steps into the house he becomes alright.
For the past 15 days he is speaking in whispers (even
within the house). He rarely speaks or sings in his
normal voice. The above two aspects are worrying me
a lot. Can I do something to help him come out of this
problem? Please suggest.
Thanks and regards
Vasanthi
Answer - Hi Vasanthi, Sounds like a sensory condition
to me, especially with your comment about whispering.
Perhaps he thinks he IS talking in a normal tone! As
you are probably aware, most people with autism experience
some type of sensory stimulation issues such as being
either hypo or hyper sensitive to stimulation. This
can be through sight, sound, touch, or taste. Maybe
he is so overwhelmed with all the sounds (this is common)
of the world and environment around him. Imagine him
being a little mini-superman. If he could hear through
all of the walls in all the buildings around him, just
imagine all the overwhelming sounds he would hear in
between. You could try earplugs and see how it goes.
Hope this helps.
2. Subject: Aspergers syndrome
Question - I have 3 children ages 4,3, &21mths.
my son aged 4 has Aspergers syndrome. We are only new
to researching jamies problem, however 1 particular
question that mainly my husband is concerned about is
the chance of probability that our next child if born
a boy, would likely have this problem or similar. Your
thoughts on this would be appreciated.
Tracy
Answer - There is concern that it is linked genetically
but the chances are very slim. There is a Doctor (Dr.
Peter Tsastmari) that is actually doing a study pertaining
to families that have more than one child with autism
who would probably be a better candidate to ask what
the actual probability is. You may be able to find him
through a search engine.
Hope this helps.
To see more Q & A, visit http://www.autismtoday.com/?01
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Books, Videos and Other Resources- New Resources now
available through Exceptional Resources
A Place Within the Sphere - By Tanis Morran
" Images swirled by- horses, mirrors, stars, guitars,
chocolate bars, water, bicycles, tigers, visitors from
afar." What did Esmeralda really see when she gazed
into the crystal sphere, to its absolute centrepoint?
Was this what Savannah, the delightfully mysterious
girl who has autism, saw when she seemed hypnotized
by the glass ornaments on her tree? It all begins as
young Esmeralda Mrky of Cowichan Lake finds herself
concerned about how she compares to others and how she
can avoid being lonely. She wants answers as time goes
by.
$ 20.95 Canadian (appx $ 13.50 U.S.) Item: 3724-0039
Asperger's Syndrome and Adolescence- By Brenda Smith
Myles
The middle school years, and particularly the transition
to middle and high school, pose challenges for all students.
But for students with Asperger's Syndrome (AS) the transition
can be traumatic, leading to a downward emotional spiral
and depression. In this comprehensive and thorough book,
the authors start with an overview of those characteristics
of AS that make adolescence particularly challenging
and difficult. The centerpiece of the book is a detailed
discussion of strategies and supports necessary to ensure
a successful school experience for students with AS
at the middle and secondary levels. What sets this book
apart is the way it ties all the recommended strategies
together in a real-life case study of Michael, a youth
with AS. This touch of real life continues in the closing
chapter, which consists of statements by parents and
adolescents with Aspergers Syndrome about the transition
years. This book is critical reading for everybody who
lives or works with an adolescent with Asperger's Syndrome.
$ 39.95 Canadian (appx $ 23.95 U.S) Item: 3523-5138
To purchase any of these books visit http://www.exceptionalresources.com/?01
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