An
interview with Norm Ledgin conducted by Karen Simmons,
July 1, 2002
Bio: Norm Ledgin is a professional safety educator
and in the newspaper publishing business for fifteen
years. In 1984 he and his wife Marsha turned to
fulltime parenting, being the parent of a young
man diagnosed with Aspergers Syndrome. In
his latest book, Aspergers and Self Esteem,
Insight and Hope Through Famous Role Models, Norm
relies on history to present a hopeful attitude
about Aspergers peoples future prospects.
He makes his home in Oxford Township, Kansas with
his wife and two sons.
An Interview with Norm Ledgin, author Diagnosing
Jefferson and newly released Aspergers
and Self Esteem, Insight Through Famous Role Models.
Karen: Ive reviewed your first book, Diagnosing
Jefferson as well as your recent book, Aspergers
and Self Esteem, Insight Through Famous Role Models.
What is your background and area of expertise,
Norm?
Norm: Im a political journalist (Litt.
B. in Journalism, M.A. in Political Science).
I trashed my career inadvertently while still
at Rutgers University-by co-chairing a Washington
restaurant sit-in (before they were
called sit-ins) in 1948, by joining
a black fraternity in 1949, and by giving my name
as an American sponsor of the Stockholm Peace
Appeal (urging the U.S. and U.S.S.R. to renounce
a nuclear arms race) in 1950.
These missteps-the last of which
was condemned broadly by the House Un-American
Activities Committee-earned me a blacklisting,
so I never worked for the better newspapers.
I then emigrated to such Third World places as
Louisiana and Kansas to settle for unspectacular
work (promoting traffic safety) in order to feed
my family.
The other part of my expertise was
having a son diagnosed with Aspergers Syndrome
when he was twelve in 1996 and subsequently reading
everything I could find on the subject.
Karen:
Very interesting, Norm. I believe I was at a few
sit-ins myself. What made you come
up with the idea of writing about famous role
models?
Norm: While reading biographies and works of
Thomas Jefferson, which I had been doing since
the late 1940s, I found what appeared to be coincidences
between my sons behavior and Jeffersons.
When I counted twenty similarities in their shared
idiosyncrasies, I was impressed. When I counted
fifty, I decided to write Diagnosing Jefferson.
Later I realized there were other achievers in
history with whom to match modern diagnostic criteria
for Aspergers Syndrome. That led to my lecturing
on the subject of role models and,
subsequently, writing Aspergers and Self-Esteem.
Karen: How did you decide which role models to
include?
Norm: Suspicion was my main drive toward most
of the role models. I read their biographies,
concentrating mainly on their childhood through
teen years. (By the way, you only find objective
biographies of people after theyve died.)
Temple Grandin mentioned a few of them in her
1995 book, Thinking in Pictures.
I based my suspicions on famous achievers
early aloofness in social situations, nonverbal
issues such as awkwardness, their fixations, and
publicly-perceived impairments in
their careers or other social relationships (recognizing
they might never have thought of their decisions
as reflecting impairment at all).
I rejected a number of people Id suspected
of being on the autism/Aspergers continuum
because I found in them signs of other conditions,
such as manic-depression or pervasive developmental
disorder not otherwise specified.
Karen: Where did you go to obtain information
about these role models, Norm?
Norm: I scoured the biography shelves at the
public library, plus magazine pieces and Internet
articles. If there was even a smidgin of information
about early childhood and reliable descriptions
running through the teen years of the selected
historical celebrities, any person with knowledge
of Aspergers might draw reasonable conclusions
about whether they should be candidates for the
autism/Aspergers continuum.
The most difficult part of such an examination
was to make a judgment about what the diagnostic
criteria refer to as social or vocational impairment.
Thats a negative term that a supposedly
impaired person isnt always
ready to accept, so I tried to see matters through
the celebritys eyes as well as societys.
For example, Madame Curie lived in relative poverty
immediately following her discovery (of extracting
radium from pitchblende) because she believed
it would be wrong to profit personally from the
results of scientific inquiry. Society in general
doesnt understand such ethics, so it regards
people like Marie Curie as somewhat cuckoo-definitely
impaired.
Karen: What do other historians say about the
book, the concept, the ideas?
Norm: Most historians have avoided commenting
because they dont know what to make of it.
They would rather arrange facts revealed in dusty
documents than try to get into the mental processes
or labyrinths of reasoning those very facts reveal
about their subjects. Only a few have examined
their subjects possible motivations or personal
anguish and have made stabs at guessing the root
causes of what troubled their heroes or heroines.
Had modern historical biographers matched Thomas
Jeffersons idiosyncrasies with diagnostic
criteria for Aspergers instead of scratching
their heads about his quirks, theyd have
made the same discovery about Jefferson that I
have. Supporting my conclusions about Jefferson
in a logical and orderly manner was easier for
me than finding someone with the guts and wherewithal
to publish them.
Karen: Why werent these individuals labeled
in the first place with something?
Norm: They were labeled-as odd, eccentric, quirky,
strange, even creepy-but those are the categorical
judgments of a society generally unschooled in
science. What we have learned in the past 58 years
about autism-an evolving body of knowledge-has
provided us tools by which to appreciate a few
of the more dramatic facts of history.
For instance, why did the widower Jefferson sleep
with his one-quarter-black sister-in-law (and
house slave by inheritance) for 38 years and impregnate
her eight times (such facts arising from scientific
and historical studies)? Because skin-color differences
didnt bother them when, at a critical point
in both their lives, they discovered they were
in love and couldnt care less how others
viewed the situation. The slave issue
is less an issue when one learns what TJ tried
to do about it at various stages of his long life
(83 years).
Does that relationship put a new light on Thomas
Jefferson or what? At once we have a man faithful
to a commitment and who honored it despite its
effect on his public image, who had a strong sense
of family ties when selecting the one person who
could meet his needs for trusting and loving,
who despite throwing parties for show
was at heart a loner-resisting intrusion into
the privacy of his south wing suite at Monticello
(of which Sally Hemings was caretaker), all these
and more in the example of that relationship being
hallmark characteristics of an adult with traits
of Aspergers Syndrome.
Karen: How do their descendants feel about making
these claims?
Norm: Jefferson descendants in both family lines-those
descended from the 10-year marriage and those
from the 38-year liaison-have not
been offended, nor even very much surprised, by
any of my dozens of Aspergers-trait conclusions.
Realize, please, that high-functioning autistics
are often very talented people. Family members
appear to have turned that around into a syllogism,
to wit: Many of us who are descended from
TJ are talented. Such talents often spring from
high-functioning autism. Our family probably has
a strain of autism running through it (and deep-down
weve had our suspicions of that).
Its common knowledge that the Randolphs
of Virginia, the family of TJs mother, were
thought to have had more than their share
of eccentrics, so no Jefferson genealogist is
going to give anyone an argument.
As for other families mentioned in Aspergers
and Self-Esteem, the book hasnt been out
long enough to bring a response.
Karen: Do you believe in synchronicity, meaning
that coincidences are not merely coincidences,
rather, events happen at a certain time for a
reason?
Norm: If by synchronicity you mean that the Louisiana
Purchase was a Jefferson achievement because,
at that particular moment, Napoleon needed cash,
then yes. If you mean the intervention of fate,
or perhaps divine intervention, then no.
I could go on. The eccentric folksinger John
Hartford wrote Gentle on My Mind (not
a historic achievement but certainly a major musical
one) because he was infatuated with Julie Christie
after watching her in Dr. Zhivago. Had she not
been in that film, there might not have been such
a song.
Had Bela Bartok been a better pianist or more
of a mainstream composer, he might not have seen
possibilities for a career shift when hearing
a peasant girl sing in a musical scale foreign
to his trained ear. He might not have gone on
to collect 6,000 folk melodies to share with the
rest of us.
Had Carl Sagan been unimpressed with his religious
upbringing and not seen in Moses and Jesus something
special and even otherworldly, he might not have
believed they were aliens, which belief led to
his positing and promoting theories about the
existence of life on other planets.
Karen: What impact did you hope to have with
the book?
Norm: As has already happened-and it happened
many times after publication of Diagnosing Jefferson
two years ago-people have e-mailed or written
me, or theyve come up to me at meetings,
commenting how my conclusions have turned their
childrens lives around toward a more positive
outlook.
My son Fred was among the first to read it, and
he told Tony Attwood that it made him realize
he could be successful despite his condition.
Thats all I had ever hoped for.
Karen: Thank you for your time, Norm, youve
are incredibly insightful and inspirational.
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