Written
by Temple Grandin
During my travels to many autism conferences I have observed
many sad cases of people with autism who have successfully completed
high school or college but have been unable to make the transition
into the world of work. Some have become perpetual students
because they thrive on the intellectual stimulation of college.
For many able people with autism college years were their happiest
(Szatmari et al., 1989).
I would like to stress the importance of a gradual transition
from an educational setting into a career. I made the transition
gradually. My present career of designing livestock facilities
is based on an old childhood fixation. I used that fixation
to motivate me to become an expert on cattle handling. Equipment
I have designed is in all the major meat plants. I have also
stimulated the meat industry to recognize the importance of
humane treatment of livestock. While I was in college I started
visiting local feedlots and meat packing plants. This enabled
me to learn about the industry.
Many successful people with autism have turned an old fixation
into the basis of a career. I was lucky to find Tom Rohrer,
the manager of the local Swift Meat Packing plant, and Ted
Gilbert, the Manager of the Red River Feedlot (John Wayne's
feedlot). They allowed me to visit their operations every
week. They recognized my talents and tolerated my eccentricities.
These people served as important mentors. Educators who work
with autistic students need to find these people in the business
community. I finished up at Arizona State University with
a Master's Thesis on cattle handling and chute design. At
the same time I did some freelance writing for the Arizona
Farmer Ranchman Magazine. This enabled me to further learn
about the livestock industry and develop expertise.
My next step was to get hired for my first job at a large
feedlot construction company. Emil Winnisky, the construction
manager, recognized my talents in design. He also served as
a third important mentor to force me to conform to a few social
rules. He had his secretaries take me out to buy better clothes.
At the time I really resented this, but today I realize that
he did me a great favor. He also told me bluntly that I had
to do certain grooming niceties such as wearing deodorant.
I had to change. I was most interested to read this passage
in one of Kanner's papers about people with autism that make
a successful adaptation: "Unlike most other autistic
children they become uneasily aware of their peculiarities
and they begin to make a conscious effort to do something
about them." (Kanner et al. 1972).
Emil was an eccentric guy himself and that may explain why
he hired me. About six months after I was hired, Emil was
fired. I continued to work for about a year, and I quit because
I was asked to participate in some highly questionable business
practices. While I was at the construction company I learned
drafting from Davy, their wonderful draftsman. Davy and I
got along, he was a shy loner who drew the most beautiful
drawings. From contacts I made at the construction company
I started doing freelance design work. I started my independent
consulting and design business one job at a time. People respect
talent, and I soon developed a reputation for being an expert.
While I was slowly building up my business I had enough financial
resources so I did not have to take a job at McDonald's to
pay the bills.
The freelance route has enabled people with autism to be
successful and exploit their talent area. Computer programming
is often a good area. To get the business started people with
autism need someone to help them get some of their initial
jobs. A freelance business also helps avoid some of the social
problems with a job in one place. I can go in, do the design
job, and then get out before I get involved in a social situation
where I could get into trouble. Other freelance businesses
which can work well for people with autism are piano tuner,
motor repair, and graphic arts. These jobs all make use of
skills that many people with autism have, such as perfect
pitch, mechanical ability and artistic talent.
Lack of Social Understanding
I soon developed a reputation in Arizona for being an expert
in my field, but I got into trouble socially. I caused a big
bunch of trouble for Tom Rohrer, Manager of the Swift plant.
I did not understand that people have egos, and that protecting
their egos was often more important that loyalty to the company.
I naively believed that all Swift employees would always act
in the best interests of their employer. I assumed that if
I was loyal and always worked for the good of Swift's, I would
be rewarded. The other engineers resented me. They sometimes
installed equipment wrong, and they never consulted me. They
did not like this "nerd" telling them how to do
it. Technically, I was right but socially wrong.
I caused trouble for Tom Rohrer after I wrote a letter to
the President of Swift about a bad equipment installation
which caused cattle to suffer. The President was embarrassed
that I had found a fault in his operation. I thought he would
be pleased if I informed him of the mistake, instead he felt
threatened and told Tom to get rid of me. Fortunately, Tom
did not kick me out.
Over the years I have learned to be more tactful and diplomatic.
I have learned to never go over the head of the person that
hired me unless I have their permission. From past experiences,
I have learned to avoid situations where I could be exploited
or my employers might feel threatened. I learned diplomacy
by reading about international negotiations and using them
as models.
Getting in trouble over the social aspects of work is a problem
area for many people with autism. Learning the work part of
the job is easy. Many people with autism expect all people
to be good. It is a rude awakening to learn that some people
are bad, and they may try to exploit them. This is a lesson
that an independent person with autism must learn. For people
with autism who take lower level manufacturing jobs, the other
employees should be involved and trained to help the person.
The co-workers need to be trained to understand autism. A
higher functioning person with autism can avoid trouble by
keeping his mind on his work. One man worked for five years
in a lab, and his employer was happy with his work. One day
he got into trouble when he went drinking with the guys and
got fired. He would have been better off if he had declined.
To avoid problems, I keep my contacts with clients in the
technical department. Attempting to date or flirt with people
in my client's work places would cause many problems, so I
just don't do it.
Autism Follow-Up Studies
There have been two major studies on the follow up of adults
with autism who have made a satisfactory adjustment. Szatmari
et al. (1989) described six high functioning adults who graduated
from college and were able to live independently. One of those
people became a perpetual student, and the other five have
jobs. There is a tendency for people with autism to become
perpetual students because they like the stimulating but structured
college setting.
Two of the people in Szatmari's study became salesmen and
two worked in a library. The fifth person became a physics
tutor. Physics tutor would be a good job to do on a freelance
basis. People with autism are often good at teaching others
in their areas of special skills. Jason Utley from Kentucky
mastered the skills to become an Eagle Scout, and the other
scouts liked him because he teaches them to tie knots. Teaching
and being a salesman involve social interaction but it is
often one-way interaction where the person with autism gets
to talk about his area of interest. It does not require a
complex understanding of social relations.
Kanner et al. (1972) followed up nine high functioning cases
where a good adjustment had been made. Five of these people
had jobs. The jobs were bank teller, lab chemist, blue collar
Agricultural Experiment Station worker, accountant, and library
page. One of these people bounced from job to job due to social
problems. The job placements that were successful did not
involve complex social interactions. A bank teller's interactions
can be routine and stereotyped.
The person who became the lab chemist originally had a nursing
job. This job was a disaster because she did not know how
to be flexible. She learned from the nursing text book that
mothers should nurse their babies for only 20 minutes. When
she abruptly took the babies away from the mothers in the
obstetrics ward they became angry. She could not understand
why. When she switched to the chemistry lab, she was appreciated
for her knowledge of chemistry. The person who is now an accountant
got dismissed from a previous job after he was promoted to
a supervisory position. I heard about another sad case where
a man with autism had been a successful draftsman for many
years in an architectural firm. When he was promoted and had
to be involved with clients he was fired. He should have been
left working on his drawing board.
In summary, a person with autism can make a successful transition
into a job or career.
Gradual Transitions - Work should be started for short periods
while the person is still in school.
Supportive Employers - Parents and educators need to find
employers who will be willing to work with people with autism.
Mentors - People with autism, especially the higher functioning,
need mentors who can be both a special friend and help them
learn social skills. The most successful mentors have common
interests with the person with autism.
Educate Employers and Employees - Both employers and employees
need to be educated about autism so they support the person
with autism and help him. They also need to understand an
autistic person's limitations with complex social interactions
to help him avoid situations which could cause him to lose
his job.
Freelance Work - Freelance work is often a good option for
very high functioning people who have a special skill in computers,
music, or art. The person with autism will need someone to
help him get the business started and possibly educate clients
about autism. Successful freelance businesses have been started
in computer programming, piano tuning and graphic arts.
Make a Portfolio - People with autism have to sell their
skills instead of their personality. They should make a portfolio
of their work. Artists can make color photocopies of their
work, and computer programmers can make a demonstration disc.
The portfolio of the person's work should be shown to the
people in the art or computing department. In all of my jobs,
I had to get in the "back door." Since people with
autism do not interview well, the personnel department should
be avoided. Technical people respect talent, and a person
with autism has to sell his talent to an employer.
References
Kanner, L., Rodriguez, A., and Ashenden, B. (1972). How far
can autistic children go in matters of social adaptation?
Journal of Autism and Childhood Schizophrenia (Now titled:
Journal of Autism and Developmental Disorders), 2: 9-33.
Szatmari, P., Bartolucci, G., Bond, S., and Rich, S. (1989).
A follow-up study of high functioning autistic children. Journal
of Autism and Developmental Disorders, 19: 213-225.
Revised February, 1996. An earlier version of this article
appeared in The Advocate, Summer, 1992.
Reprinted with permission from www.autism.org
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