| As part of
The Times Christmas Appeal for The National Autistic
Society, our reporter reveals the difficulties of
diagnosing the condition
[By Penny Wark.]
http://www.thetimes.co.uk/article/0,,72-2001571729,00.html
Autism is a condition that responds not merely
to treatment, but to recognition. If a child is
found to be autistic, the expectations around
him can change and pressure can be lifted, and
with it the child's anxiety. Yet, as many parents
discover, it can take years of being shunted from
one health professional to another before autism
is diagnosed in a child.
Although awareness of autism is growing, there
are still doctors who know little or nothing about
it. Especially at consultant level, says Dr Judith
Gould, a consultant clinical psychologist who
is the director of the Centre of Social and Communication
Disorders, run by The National Autistic Society.
"Senior people are not always up to date
and may not be aware of the spectrum of autism,"
she says. "There are still areas where they
take a narrow view."
This year The Times Christmas Appeal invites readers
to help children with autism by raising funds
for The National Autistic Society. Over the past
ten years its Centre of Social and Communication
Disorders has led the way in training paediatricians,
psychiatrists, psychologists and speech and language
therapists to diagnose autism.
Two years ago a study carried out by the society
showed that 65 per cent of parents saw three or
more professionals before getting a firm diagnosis
for their child. Forty per cent of parents waited
more than three years for a diagnosis, and 10
per cent waited ten years or more.
"Parents sometimes have a tremendous struggle
to get through the system," says Dr Gould.
"
Our aim is for people to be seen locally, because
then they can be offered ongoing support. But
training is essential because autism cannot be
diagnosed with a blood test or a brain scan; it
is a matter of taking a history and understanding
different manifestations."
For a child of two-and-a-half to three the indications
revolve around social interaction. Autistic children
do not relate well to other children or their
environment, they may hit out. They like routines
and are resistant to change.
"The autistic child is more interested in
leaves on the trees or a particular toy than another
toddler sitting beside him. They lack a social
instinct. "We think mothers usually know
within the first few months that something is
not quite right about their baby. He's not alert
and lively and curious and exploring in an appropriate
way. "Or if a baby is very passive, that
is another indicator because it's normal for babies
to cry and be demanding and want cuddles.
An experienced clinician can pick it up within
the first year or 18 months. Most parents seek
help when they see that their child's language
and play isn't
developing," says Dr Gould.
Parents concerned that their children may be autistic
should see their GP and ask for a referral to
a child development centre. The earlier the diagnosis,
the better for the child and the family. Dr Gould
has seen adults given the diagnosis of Asperger's
syndrome at 50. Their condition has not been recognised
because they are passive, but they have led difficult
lives in which they have been teased and bullied.
This need not happen, she points out, and training
professionals to diagnose the condition promptly
is the way to make the lives of those who have
autism easier.
The National Autistic Society: 020-7833 2299;
helpline: 0870 600 8585
http://www.feat.org
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