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By DAVID CORCORAN
It was an exciting moment for me Ñ and,
I imagine, for other
parents of children with the baffling
neurological disorder called Asperger syndrome
Ñ when The New York
Times Magazine published
Lawrence Osborne's "Little Professor Syndrome"
in June 2000.
The title may have been condescending, but the
article itself was
terrific, perhaps the best yet about
Asperger's in a mainstream publication: a 4,500-word
exploration, in
remarkably vivid and sympathetic
language, of a world that few readers had visited.
So it was doubly exciting when Mr. Osborne, a
widely published health
and science journalist, expanded
the article into a book, "American Normal,"
published last month.
Asperger's, as most readers probably still need
to be told, is a
lifelong disorder of unknown origin that
usually shows up around 18 months to 3 years.
Generally thought to be
a form of autism, it is
characterized by normal or above-normal intelligence,
social
awkwardness, verbal rigidity and, most
conspicuously, a fixation with an obscure topic
that can be learned by rote.
People with Asperger's have a hard time relating
to other people. But
they can and do go on for hours
about their obsession Ñ Civil War battles,
lighting fixtures, members
of Congress, train engines (hence,
"little professors").
The syndrome has no known cure. But growing awareness
of it, coupled
with the federal law that
requires schools to provide appropriate services
to students with
disabilities, means that many more
children than in the past are receiving needed
attention and can hope
to grow into happy and productive
adults.
Still, what Asperger's awareness has lacked is
a wide-ranging book by
a writer with journalistic and
literary credentials Ñ a book that could
do for Asperger's what
Oliver Sacks's "Man Who Mistook His
Wife for a Hat" did for other obscure brain
disorders. But those of
us who were hoping that "American
Normal" would be that book are in for a severe
disappointment.
It takes the form of a transcontinental odyssey
in which Mr. Osborne
drops in on children with
Asperger's and adults who are too old to have
had it diagnosed in
childhood but who clearly show its
symptoms. (Some are parents of Asperger's children,
suggesting that
the condition may run in families.)
He is an acute observer, and his descriptions
are penetrating and
tinged with empathetic humor. Nicky, a
9-year-old in Adelanto, Calif., who writes tiny
poems in the shape of
diamonds and has already scored in
the 99th percentile on an SAT, has a mind that
is "disturbingly
hyperfactual and blithely associative."
A. J., whose obsession is vacuum cleaners, "loved
the promotional
video that came with the new Phantom
model and watched it over and over, while rocking
back and forth."
When his grandmother disciplines
him by telling him he won't be able to touch the
new vacuum, "a
sullen look of castigated impotence
would suddenly come over his face."
But when Mr. Osborne leaves the company of people
with Asperger's,
the book runs seriously off track.
Much of it is devoted to long, tangential and
unrewarding meditations
on the American psychiatric
establishment, the horrors of highway sprawl and
the possibility that
various figures Ñ Thomas
Jefferson, the Canadian pianist Glenn Gould Ñ
may have had
Asperger's. Mr. Osborne himself suspects
that he may have undiagnosed Asperger's, and he
returns at tiresome
length to his obsession with the
"Iron Chef" television program and his
insistence on staying in Red Roof
Inns.
His larger point, and the meaning of the title
"American Normal," is
that Asperger syndrome may be less
a disorder than a societal and psychiatric construct
Ñ a condition
that he concedes is real, but one whose
diagnostic criteria are "so complicated and
so contradictory and so
blurred around the edges as to
sometimes stretch credulity." The implication
is that society's
obsession with "normality" has led it
to
diagnose anything abnormal as an illness, one
that needs to be
treated with expensive drugs and
psychotherapy.
It's a familiar indictment. (The introduction
approvingly quotes Dr.
Mel Levine, a pediatrician at the
University of North Carolina, as saying, "We're
pathologizing all
human behavior, and in so doing we're
creating an institutionalized nightmare Ñ
a truly mad system in which
everyone is `sick.' ") But
Asperger's is an odd candidate, because few experts
believe that
drugs and psychotherapy can do
anything more than relieve some of its side afflictions
like
depression and attention deficit disorder.
In one of his digressions, Mr. Osborne takes
us to a Malaysian tribe,
some of whose members have an
exaggerated reflex called latah, which causes
them to go into a
trance when startled and behave in ways
that would embarrass them if they knew what they
were doing Ñ
cursing, taking off their clothes, singing
bawdy songs. Yet in the tribal culture, such people
are treated with
affectionate amusement. By contrast,
Mr. Osborne says, Americans with Asperger's are
viewed as having a
"disorder" that needs "curing."
What if "around a core biological illness,"
he asks, "a large
superstructure of behaviors and moods had
been created by the society itself?"
But the difference between latah and Asperger's
is plain from Mr.
Osborne's descriptions of the two
syndromes. One is limited to special circumstances,
and it does not
disable its sufferers; the other is
pervasive, meaning that it invades nearly every
aspect of a patient's life.
This book trivializes its subject by making it
a vehicle for a
diatribe against psychiatry and the larger ills
of society. In the end, it turns out to be less
about Asperger
syndrome than about its author. The subject
is not as fascinating as he seems to think it
is.
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