| by Jerimie W. Goike
I would like to begin by dedicating this special
day to my parents who were determined not to be
ignored and never give up. And to my grandmother
who broke my silence and got me to talk. I was
diagnosed with autism at eighteen months. My parents
and I were living in Germany. The diagnoses was
made by a military psychiatrist. After the diagnosis,
the military made arrangements for us to return
to the United States. We came back to Anniston
which is my hometown and lived with my grandmother
for a few months until we knew what to do and
where to go.
My first symptoms started with being non-verbal,
rocking, sound sensitivity, resistance to change
and I had some special abilities such as drawing
and I loved music. I'm also visually impaired
which has bothered me since birth but never had
anything to do with me being autistic. This was
a disability I already had before. I got my first
pair of glasses after I turned a year old. After
coming home, my mother started taking me to some
doctors which did little good. Some would say
"well he's just a baby going through some
phases and he would come out of it soon."
Well that wasn't enough for my mother. She knew
there was something more wrong and nobody was
listening yet. I still wasn't talking yet and
I kept to myself a lot. My grandmother took this
pretty hard because the last time she saw me I
was only a few months old. Now I was already walking
and playing. I have a favorite story I like to
tell about how my grandmother got me to talk.
Every night when she put me to bed she would look
at me and say "say mama, say mama" at
me. She would do this every night until one night
I said "mama" and that's how I finally
began talking. It was the greatest joy I think
my grandmother ever had and that's how my silence
was broken.
I was three years old and this was just the beginning.
After having no luck with the doctors on trying
to learn more about my situation we went to the
mental health center and met with a social worker.
After meeting with this person, my mother learned
about the Autism Society of Alabama and that's
where we learned about the TEACCH program in North
Carolina. We tried a few programs through Jacksonville
State University and had no success. These programs
were only experimental at the time. I remember
one scenario where they had me do a task and if
I didn't cooperate I would get squirted with a
water gun for punishment. There was another scenario
where I was held down in a chair and I would be
kickin' and screamin'. Neither of these scenarios
were working or providing any results and it all
seemed to be set towards more punishment than
praise. So we decided to move to North Carolina
and I enroll into the TEACCH program at the University
Of North Carolina in Chapel Hill. I was also put
into a special pre-school devoted to working with
autistic children and had ties to the TEACCH program.
TEACCH stands for Treatment and Education of Autistic
and related Communication Handicapped CHildren.
This program was very unique and in a class by
itself. I really believe it was one of the only
renowned programs in the whole country to provide
a different approach to autism. I would go through
three and a half years of various sessions. The
major emphasis was to train my parents as therapist.
Since the home was the best environment to learn
in. They would give a set of task's to perform
with me at home. We traveled to the TEACCH center
once a month for progress reports and to get new
home assignments. There were also times where
they came to our house to do behavioral observations,
give ideals and suggestions. This was a very coordinated
program between my parents and therapist's involved
with me. I would like to stress that TEACCH was
not a miracle cure for autism. But it can reduce
the severity of the autism and make a lot of progress
along the way. I believe what has helped me the
most is catching it early enough and going through
some early intervention. You really have to play
your part and be supportive which can be very
valuable in a child's progress. Everybody's in
it together and it's like a team, that's one thing
I remember most about the program. After leaving
TEACCH It was recommended that I'd be put in special
education classes when I got ready to enroll in
elementary school and I would remain there until
I finished high school. But I was definitely a
lot better off than I was when I was diagnosed.
I made a lot more progress then expected.
Although I was in special ed. most of my life
I participated in regular classes and after school
programs. My school was very helpful and supportive
in making it possible for me to participate in
a classes or programs offered by my school. I
played basketball and became team manager until
I graduated. I took art and speech classes which
I enjoyed very much. After graduating high school
I got involved with Vocational Rehab. I spent
some time in Talladega studying electronics and
then I got a computer and taught myself how to
use some of the Microsoft Office Programs. My
efforts led me to getting a job and moving out
on my own. I worked for a non-profit organization
called SEAC (Special Education Action Committee)
from 1995 to 1996 as a clerical assistant. Right
now, I'm currently employed with the Alabama Dept.
Of Rehabilitation Services as a telephone operator.
I've been with the agency for four years and it's
been a very exciting time for me. I also have
a part-time D.J. Business. I moved to Birmingham
from Anniston to be on my own and have access
to transportation. I've lived successfully on
my own for five years.
I've had a wonderful life and I wouldn't change
a thing. I would like to just say that learning
from these experiences has prepared me for many
challenges that came later in my life and It's
kept me strong during those times. I would like
to thank those who've helped and supported me
through it all. If you have a dream, work hard
and believe in yourself because I know dreams
do come true. Thank you all for being here today
and may God bless you in all that you do.
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