| Billy is autistic
and he is my godson. He is a child I would never
change to normal for anything in the world. As a
family I think we have stopped looking for a cure
and have come to accept Billy for who he is and
we only search to understand him instead of fix
him. When secretin first came out we were very excited
as a family and looked in to it and what it might
be able to do to help Billy. It was experimental
at the time and would have cost a lot of money and
wasn't something we were willing to try. We never
really talked about it again. My sister has two
children Brianna 11 and Billy 9 she is good mother
but a busy one. I just graduated from college and
have a lot of time on my hands and have been reading
everything there is to read about autism because
no one in our family has the time. Billy is already
nine years old and I feel that time is slipping
away from us. I am not searching to cure him I am
only searching for ways to deal with him and his
behavior. Billy is a pretty big boy and will probably
grow to be maybe 6ft tall. He is only nine and he
beats my sister or his sister up every once in awhile.
She is able to control him to an extent. I am afraid
for the day when she can't and he gets the best
of her or me since he is close to me. He sometimes
pinches or hits you when he gets upset. My sister
has scars on her arms from his scratches. What I
fear the most is the day that we can no longer control
him. I have read a lot of notes from parents of
autistic children who have said that the aggressiveness
gets worse as they get in their teens and that they
hope that it is just puberty and it will pass.
It recently took for 5 grown men to give Billy
a buzz haircut. It was ultimate chaos that day.
It was what he feared the most the clippers. There
was about 10 of us one morning at my mothers house
we told Billy he was going to get a hair cut.
He yells "NO HAIRCUT" and then says
"OK, OK CALM DOWN CALM DOWN". We got
him to sit in the chair on his own but when the
Buzzer started going he started to run. We held
his legs, arms and head down. All While he was
spitting, trying to kick them and he even used
his toe nails to dig into the skin of those who
were holding his legs down. I chose not to help
because it was too painful to me to see him screaming
and to see the tears stream down is red little
face. I wanted to cry. At first I tried to help
comfort him but he just looked at me like Auntie
Kathy why aren't you helping me. It took about
two hours to finish. They let him go once because
he was to strong he had a Mohawk only half his
head finished as he ran to put his hat on. We
told him we had to finish all of us yelling at
him to get back in the chair, and then the struggle
began again. We did finish but that experience
haunted me.
I got on the Internet and began to search as
to why he was so scared of getting a haircut.
When I came across an article written by Temple
Grandin on the senses and how certain sounds for
her were torture and how when her mother used
to wash her hair and after her scalp would hurt
her. I learned that many autistic children's senses
are heightened perhaps even 5 times more than
our own. Sight, touch and hearing. It all made
sense to me I went into the bathroom and turned
on the clippers and put them next to my ear to
listen not a real pretty sound for my ears to
hear. Perhaps Billy heard it differently than
we did and the feeling against his scalp may have
been overwhelming and even painful for him. That
is why he does not like haircuts not because he
was disobeying us or acting like a little spoiled
brat by not wanting to do as he was told.
My older brother is a caring person and I know
he loves Billy. But he tends to yell a lot and
his voice is very harsh and mean sounding. After
the haircut was finished everyone was yelling
at Billy telling him to take a shower to rinse
the hair off. He threw himself on the floor banging
his head. I yelled at my brother and everyone
else (and I never yell) to leave him alone for
awhile that he has been traumatized enough. What
it must have been like for him all ten of us yelling
at him to do this and to do that. It was sensory
overload for him he was angry frustrated and hurt.
I printed the article out and made everyone of
my family members read it. It touched them all
and my Dad thought that we should even let him
grow his hair long and wear a ponytail. My yelling
older brother even agreed after reading the article
who is often the one who says you can't let him
get away with things he is spoiled and gets what
he wants. That may be true sometimes but I want
to tell him don't you see its not that he is "spoiled"
he is autistic. I knew that his sensitivities
might have been why he was acting the way he did
but I never knew how much. I noticed other things
that bother him. Like when the dogs bark he tells
them to stop and makes them come in the house.
Sometimes he likes to lick things, and he smells
and touches my hair quite frequently.
The reason I wanted to share this story was because
I wanted to encourage other families to educate
themselves and other family members on autism.
Because other people may act like they understand
autism but they really don't all they see is a
child misbehaving or a child who doesn't listen.
They don't see or understand the world of autism
any more than we do. The only people who know
what it like to be autistic is autistic people
themselves. People like Temple Grandin who can
tell us now as adults what it was like as a child.
They are able to tell us now because they have
learned how to express themselves as adults or
teenagers. I have learned the most about autism
from people who are autistic. I am sorry Billy
is autistic and will always be. No diet, medication
or miracle therapy will ever change that. After
that haircut was over I told him how handsome
and nice he looked. He came over to me looked
at me grabbed my arms still mad and scratched
me and I said, "what did I do?" Of course
he couldn't tell me. It was his way of telling
me you didn't help me. Well I am going to try
my best to help him now I will do my best to understand
him and the world he lives in.
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