| by Liane Gentry Skye
There was a time when I couldn't take my five-year
old son out. David is autistic. His inability
to communicate his wants and needs to us made
our lives a never-ending guessing game. We used
trial and error to try and determine what it was
David wanted to tell us as he had no method of
functional communications. If we made repeated
errors, we could pretty much count on a series
of tantrums before the outing ended. It seemed
safer to keep David at home, where at least he
was content.
All of that has changed now. I am delighted that
I can now take my son to a restaurant and watch
him participate actively in ordering his meal,
or requesting the need to go to the bathroom.
Last night, in celebration of my son's first
true sentences, I took David out to dinner. Just
myself and my little boy, alone, together. This
is something I would have never dared attempt
even a month ago. But I believed he was up to
the challenge. His behavior had been perfect for
weeks now.
David has always adored French fries, and the
Washington Street Alehouse in Wilmington, Delaware
serves them just the way he likes them.
The woman at the table next to ours couldn't
have missed the fact that something was different
about my five-year old son. She had spent the
good part of her meal gawking as my son worked
to communicate with me through pictures velcroed
to a three ring binder. "I want orange juice"
my son said, by constructing pictures on a sentence
strip and handing them to me. As soon as I acknowledged
his request, he then put down a French fry icon
and paired it with the words, "I want".
"Oh, you want French fries!" David
nodded his head--something it took me three months
to teach him. His smile was beatific. Joy bubbled
from the recesses of my heart which had been shadowed
with darkness for far too long.
The woman at the next table rolled her eyes and
snorted. Her obvious opinion that children like
mine should remain hidden from the world melted
her attractive face into a mask of bitter derision.
Suddenly, she looked ugly to me. I chose to ignore
her. "Perhaps she thinks what David has is
catching," I thought to myself.
I really didn't give a flying flip what she thought.
This was a moment of triumph for my child. After
years of struggling to teach David to understand,
process, and retain verbal communications, the
Picture Exchange Communications program revolutionized
his life. David handed his menu request to our
waitress, and she immediately wrote down his order.
"He's so cute," she said.
"Why yes, he is, and such a good boy,"
I bragged.
~
This journey through teaching David to talk with
pictures has been peppered with a thousand little
miracles, the biggest one being my acceptance
that my little boy simply did not possess the
ability to process language. But the discovery
that he could process written words paired with
pictures led me to explore implementing Pyramid
Educational Associate's: "Picture Exchange
Communications System" with David.
Finally, we found something David could be successful
at. He caught on to the idea of engaging another
human being's attention with pictures immediately.
Over the months he moved from simple one-word
requests to forming real sentences. He communicated
more and more fluently in a language anyone could
understand.
My son proved time and again he could be taught
to navigate this world. My student became my teacher.
My curriculum was my daily discovery or the precious
personality that was my son.
Recently, David began commenting on his environment:
I see, I hear, I feel. It was a step that not
all picture communicators can grasp. It was a
step which expanded David's world a hundred times
over.
Finally, David had a way to tell me his wants
and needs. He began to initiate little picture
conversations:
"David, do you want the red car?"
"I want blue car."
"This one?"
"I want big blue car."
Day by day, as my son mastered the program further,
I began to discover glimpses of the bright and
engaging little boy who for the past five years
had lived largely trapped inside himself.
Nothing soothed the scars on my heart so much
as the pride that beamed from my son's face as
he participated actively in the world around him.
~
"I see balloon," David told me with
his pictures. I followed my son's brilliant blue
gaze towards the gawking woman's table. Ah, they
were here for a birthday party. Her son, who was
about David's age gawked, too. But I knew that
his curiousity was the natural interest of a child
who was experiencing something new.The balloons
belonged to him--he and his family were apparently
celebrating his sixth birthday.
"Yes, you see balloon," I told my son.
It hurt me more than a little when I placed a
red "x" over the balloon picture to
tell David that this balloon was not his. David
adores balloons, he always has. But he accepted
that this one was not meant for him. Again, pride
filled me.
Our meal was delivered and David ate his French
fries with gusto. He sat as quietly and calmly
as any child his age possibly could. But I couldn't
help but notice that every now and then his curious
stare moved to the bouquet of bright balloons
dancing over the table of gawkers.
Honestly, I was impressed with David's self restraint--he
never once made an overt motion towards the next
table. He was content to simply enjoy the bobbing
balloon ballet playing out before him. I don't
think I've ever been tickled with my boy. His
joy was contagious. I couldn't stop smiling.
As David indicated he'd finished his meal, we
paid our check and rose to leave. As we passed
the table of gawkers, David stooped to the floor.
He created "I see balloons" on his sentence
strip and showed it to the birthday boy at the
next table.
The little boy didn't know what to say, so he
simply gave David a "thumb's up" sign,
then reached up to pluck a balloon from the boquet.
His mother snatched the balloon from her son's
hand.
"Those are my son's balloons," she
said, slapping the sentence strip out of
David's hand.
Her snarling face met with mine. "Why don't
you keep that child at home until he can learn
how to act?"
I guess I could have lit into her. Maybe I should
have. But her son's gesture had touched me. I
picked up David's sentence strip and placed it
back on his book. As I stood to leave, I met with
a room full of silent diners, all of them staring.
I feared if I didn't end this horrible situation
quickly, David may quit communicating forever.
I looked at the woman's son and said "Happy
Birthday." I prayed she didn't garnish satisfaction
from the film of tears rising to my eyes.
I tried to get David to the door as quickly as
possible. It was a difficult journey, as tears
were already pouring from my eyes. My mascara
collected in the corners of my eyes and my vision
blurred. I didn't think I'd ever navigate my son
to the front door, but finally we burst out into
the last slanting rays of the evening sun.
I sat down on the sidewalk to collect myself.
David sat on my lap and began to flip through
his notebook, searching for picture words. Finally,
he found the words he wanted and handed his sentence
strip to me. "I want hug."
"Oh, yes, baby, Mommy wants a hug, too."
~
"They" tell us our autistic children
do not possess the tools to understand emotions.
"They" tell us our children can not
tolerate affection. I'd have given anything if
THEY had been watching as my son's slender arms
wound themselves around my neck. I'd have given
anything to see "their" reaction as
my little boy kissed my cheek, hugged me hard
then took me by the hand to
indicate it was time to go home.
~
Somewhere in Wilmington, Delaware there is a
little boy who turned six-years old yesterday.
I wonder if his mother realizes how fortunate
she is to have such a bright, communicative child.
I wonder if she remembers to thank God with every
passing year for her son's continued good health.
I wonder if she ever remembers to be grateful
as the word "mother" rolls from her
child's lips for the thousandth time that day.
I wonder, and I hope, but I also doubt. After
a certain age, narrow minds tend to petrify. Opinions
become cast in immutable stone.
In spite of the blatant prejudices of that little
boy's mother, I saw a flicker kindness in her
son's eyes as he considered giving my son one
of his many, precious birthday balloons.
I can only hope that child's exposure to my son
yesterday provided the seed from which true tolerance
may someday take root and bloom. It is children
such as these who will make my son's time here
on Earth something of value.
~~
AUTHOR'S NOTE: For more information on the Picture
Exchange Communication Program, please visit:
http://www.pecs.com
Many autistic children who use the PECS program
consistently for one year by the age of five move
on to develop appropriate verbal communications.
PECS has also been implemented successfully with
many non-verbal autistic adults.
In the last week or so, David has begun verbalizing
some of the words on his sentence strip--something
I'd have never thought possible as "they"
told us he'd never communicate verbally.
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