FAQ's with Author and Speaker, Karen Leigh Simmons
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Subject: verbal tangents
Karen Leigh SimmonsQuestion - I am a caseworker assisting a single mother with her 11 year old son who has been diagnosed PDD, mild MR and ADHD. I am working with him on temper tantrums, much kicking etc. However, he gets on what I call a verbal tangent (is this not what it is called, can't find any info on it.) For example, he wanted to be a fireman and went on about it for days asking the same questions over and over. The answers you give him don't sink in and so he repeats them over and over. This happens with an array of questions re: different topics. I took him to the fire station for a tour and it seemed to help him work through it, but this can not be done with all tangents. For example, he wants to go to Boston to be on his favorite tv show ZOOM. How do you get them to stop obsessing on the same questions? Is there a phrase or word that are used for this behavior that I can look up more information on treatment?
Thank You,
Lori

Answer - Hi Lori, Often verbal temper tantrums are referred to as "rage" and or "melt-downs" and is more of a behavioral concern, as it is difficult to de-escalate the particular situation. What you referred to as a tangent is more of what comes with autism (PDD) in their obsessive, compulsive, repetitive behavior.
What works best with my son with high functioning autism is to gently distract him, steering him into another interest. Social stories also work well.
You can check out: www.exceptionalresources.com for many resources in this area.
Couple of suggestions would be: A Treasure Chest of Behavioral Strategies A Work in Progress New Social Stories hope this helps

Subject: inclusion and autism
Question - I am a student at teacher training college, and as part of my course I have chosen to look at the benefits and drawbacks of children with severe autism being included into mainstream school. Do you think that autistic children can be ssuccesfully included into mainstream schools ? and do you know of any differences in the policies of inclusion between britain and other countries ?
thank you
Sarah

Answer - Hi Sarah, There are so many different variables such as the age of the student, what type of support, size of the school and class, quality of instruction etc. I am all for inclusion as long as it benefits the child the most. Many times, though, blanket inclusion (across the board) is done without these considerations for what is actually best for the child. Peer pressure can certainly be harsh on some of these kids and its questionable as to whether the benefits outweigh the detrements. Everyone wants these kids to fit into society as best as possible. It's just that we cannot "fix" autism.
I know this is not an exact answer, but then how can one answer the question: How big is a tree? The truth is they come in all sizes. You could do a search on Google using the keywords: autism+policies+britain best of luck

Subject: immunizations
Question - How can I keep from being forced by the schools to give my autistic son immunizations when I do not have a religious or medical exemption, but have studied some and do not feel it is in his best interest to do so at this time?
Dawn

Answer - I would tell them you are choosing not to have your son immunized for personal reasons that effect your own belief system and see what they say. I haven't had this experience directly but would encourage you to go to our site: www.autismtoday.com and vote on what you think of immunizations causing vaccines. Your input counts!

Subject: Discrete Trial Teaching
Question - How effective do you think Discrete trials are if they are only used in the classroom setting and not reinforced or used at home? Should all Autistic children have some form of communication system in place at both home and school? What is available to use ? I am familiar with PCS and PECS.
Dee

Answer - From the information I have read, Discrete trials should be used both at home and in the school setting. Consistency is key. Not all children with autism have the same severity of communication challenges though they do have some challenges. I know PECS is good and am not too familiar with PCS. Teach Me Language is very good
You can check out resources at: www.exceptionalresources.com hope this helps

Subject: PDD
Question - My 3 year old child has been diagnosed with PDD ( even though I totally disagree and are 99% sure he has full autism) I'm a single mum on benifits, are there any benifits I can apply for in the caring of him?????
Thanking you
Deborah

Answer - Deborah, PDD is the umbrella term for autism. When a child is this young, autism is difficult to accurately diagnose as it is assessed by observing behavior over time. Your child may very well have a more severe form of PDD, and if so will receive this by 5 or so. This should not affect the funding you receive. The support you receive will depend on what is supported in the area you live.

Subject: siblings
Question - "I have 5 children and two of them have been diagnosed with PDD. Specifically my 4th son has Asperger's. I am finding that my other children are beginning to notice that these two are not "normal" and yet I will still see them acting in some of the same ways (ie.hand flapping,obsessing) I know that siblings take after each other but I wonder how I keep things flowing for my other children? I guess what I am really asking is for any information that you might find helpful for a household that is busy on the best of days but when you throw in a diagnosis or 2 of PDD then things can be downright frantic."
Thank you
Sincerely,
Jenn Osier

Answer - Sounds familiar, I have 6 kids and two of them are special needs. What is
the age span? All I can say from experience is that eventually they will
"get it". Just explain to the best of your ability at whatever level they
are and soon they will understand. Having said that, they will always be
siblings and frantic just evolves over time.

Subject: siblings
Question -"Today I took my children ages 4 and 2 to the park. My 4 year old was recently diagnosed with high functioning autism and like he does so often he had a full blown tantrum.My other son was playing just fine. I ended up leaving the park moments after i had arrived to appease the 4 year old.Once again "punishing" my 2 year old by leaving. How can I avoid this in the future?"

Thanking you
Kate Moro

Answer - Your two year old will learn eventually what it is all about though it is difficult. I can remember when my one son was always looking up to his big autistic brother to show him that he cared and of course, Jonny never did show his emotions. It used to break my heart! Now Stephen, the younger brother understands. Be patient, it will all work out in the
longrun.


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