Autism Today Foundation

Autism from the Soul

Autism from the Soul, Stories

Come to Celebrate with Me

The invitation eloquently captures the essence of love, acceptance, and celebration despite the challenges presented by Sandra’s condition. It extends an invitation to friends and family to join in commemorating Sandra’s 15th birthday, acknowledging her unique journey and the profound impact she has had on their lives. The words convey the complexity of emotions experienced in caring for Sandra, from grief and pain to love and gratitude. The invitation encourages others to share in the joy and appreciate the precious moments spent with Sandra, recognizing her as a gift and an angel in their lives. Through the invitation, they are invited to embrace life’s blessings and find beauty in unexpected places, celebrating the resilience and beauty found in Sandra’s presence.

Autism from the Soul, Stories

From Y to A through Z

Despite the initial shock of learning their daughter Sami had Down Syndrome, her parents were determined to help her thrive. Starting at just a few months old, they incorporated reading into her bedtime routine using the Love and Learning reading program. Although progress seemed slow, a breakthrough occurred shortly before her second birthday when Sami surprised her parents by vocalizing the alphabet while reading the book. This marked the beginning of her remarkable journey to not only learn her letters and sight-read words but also to develop clear speech, defying the expectations of many professionals. Sami’s continuous progress serves as a reminder of the importance of persistence and the potential for unexpected breakthroughs in learning and development.

Autism from the Soul, Stories

I Think I Cane

This narrative recounts the journey of a man who lost his sight and initially resisted using a cane, viewing it as a symbol of his blindness and feeling ashamed. However, with the encouragement of his wife and the determination to set a positive example for his children, he embraced the cane and underwent mobility and orientation training. Through perseverance and support, he learned to navigate the world as a blind individual, mastering alternative techniques and becoming an advocate for the blind community. Now, he sees his cane not as a stigma but as a tool of empowerment, enabling him to travel independently and advocate for the rights of visually impaired individuals.

Autism from the Soul, Stories

Enter the Butterflies

Michelle recounts the challenges she faced when her son Andrew was born with a bilateral cleft lip and palate, leading to numerous surgeries and moments of despair. However, amidst the struggles, a small caterpillar named Fuzzy becomes a symbol of hope and transformation for Andrew and Michelle. Witnessing Fuzzy’s metamorphosis into a butterfly alongside her son, Michelle discovers the profound resilience and beauty that can emerge from life’s hardships, realizing that even in the darkest moments, there is the potential for growth and renewal. Through her story, Michelle shares a message of faith, hope, and perseverance, inspiring others to find strength and beauty in the face of adversity.

Autism from the Soul, Stories

Pilgrimage to Lourdes

Susanna Timor shares a deeply personal account of her journey with her daughter Stephanie to Lourdes, seeking healing and miracles. Despite doctors’ diagnoses and uncertainties about her daughter’s condition, Susanna’s faith led her to this sacred place. Through a series of remarkable events, including an unexpected encounter with a stranger and the receiving of a single white rose, Susanna finds solace and believes in the power of miracles. Her story is a testament to the strength of faith and the hope that sustains us in times of difficulty.

Autism from the Soul, Stories

The Love of a Sister

This heartfelt story recounts the journey of a family with boy/girl twins born in November 1998, one of whom was diagnosed with autism three years later. Despite the initial shock, the family embraced the diagnosis and sought various therapies and support. When the mother purchased t-shirts to support an autism group, her daughter, Julianne, questioned the purpose of the shirts and what a cure for autism meant. Julianne’s response, expressing her love and acceptance of her brother just the way he is, brought tears to her mother’s eyes and highlighted the profound bond between the siblings. The mother realized that both her children were special in their own ways, and she couldn’t imagine changing her son with autism because it would alter the essence of who he is and who they love.

Autism from the Soul, Stories

Kids Say the Darndest Things

This touching anecdote shares a moment between a mother, her son Hunter who has a rare chromosome disorder, and her daughter Brooke. After explaining Hunter’s condition to Brooke, they encounter an older man with special needs at a salon. Brooke immediately recognizes the similarities in behavior between the man and her brother, expressing her understanding by saying, “He must be missing a chromosome too!” This moment highlights Brooke’s empathy and understanding, showing how children can have profound insights into the experiences of others, even at a young age.

Stories

Becoming a woman

Doreen Marcionetti recounts her experience raising her daughter Ainslee, diagnosed with Autism-PDD/nos and a seizure disorder, who is now 17 years old. Despite the challenges they faced, one particular incident stood out when Ainslee, at the age of 11, excitedly informed her parents about getting her period, displaying unexpected joy and enthusiasm. This incident highlights Ainslee’s unpredictable yet memorable reactions to various situations, reminding her parents of her unique perspective on life despite their initial fears and concerns.

Stories

The Thanksgiving Tree

On Thanksgiving weekend in Michigan, Scott reflects on the small tree he and his wife Penni planted three years ago, rescued from a dumpster behind a local garden center. Despite its scraggly appearance, they nurtured it with optimism and dreams of its future beauty and usefulness. Scott’s enduring hope and perseverance, mirrored in his past experiences, extend to both the tree and his son Evan, who faced medical challenges at birth. Through their love and determination, Scott and Penni demonstrate the power of hope in overcoming obstacles and finding joy in the journey, embracing life’s imperfections with optimism and resilience.

Stories

Mattie and Bee Visual LLC

The author recounts their journey with their son Mattie, who was diagnosed with Asperger’s syndrome at age 2. Despite facing challenges such as limited access to services and a difficult learning environment, they tirelessly pursued resources and education, ultimately finding solace during a vacation where Mattie found comfort in water. Inspired by their experiences, the author developed visual support tools to aid children with special needs, leading to the creation of Bee Visual LLC. Despite facing financial risks and setbacks, they remain committed to helping families navigate similar challenges and provide structure for children with developmental delays. Mattie’s progress and resilience serve as a source of hope and inspiration throughout their journey.

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Dr. Daniels, National Autism Coordinator at the U.S. Department of Health and Human Services, directs the NIH’s Office of National Autism Coordination and serves as Executive Secretary of the Interagency Autism Coordinating Committee.

Pranjali Kharmode, VP of Autism Today Foundation, brings 14 years of experience in pediatric neurophysiotherapy and women’s health. She’s known for her holistic approach and holistic therapy programs in Edmonton.